Fulgent Genetics is an accredited US-based laboratory responsible for testing all Jnetics samples. The lab receives, processes and analyses samples, using the most up to date technology to look for mutations in genes associated with disorders that have increased prevalence in the Jewish community. Fulgent then securely reports the results to our dedicated genetic counsellor at North West Thames Regional Genetics who disseminates results to participants.
North West Thames Regional Genetics
North West Thames Regional Genetics, based at Northwick Park Hospital, is Jnetics’ clinical genetics partner. A dedicated genetic counsellor from the department runs our bi-monthly Jnetics Clinic, oversees the clinical aspect of school and university events, reports all results, and provides follow-up support and signposting when necessary.
Breaking Down Barriers
Breaking Down Barriers (BDB) is a project run by Alstrom Syndrome UK and funded primarily by the Sylvia Adams Charitable Trust. The purpose of this project is to strengthen the ability of patient organisations and support groups to develop supportive and inclusive services for individuals and families affected by genetic disorders. BDB works in partnership with 26 organisations, including Jnetics, who join together to share examples of good practice and develop new guidelines to highlight effective ways to support families at an increased chance of having a child with a genetic condition.
Camp Simcha makes a difference by bringing hope, joy and support to families devastated by serious childhood illness.
Chai Cancer Care
Chai Cancer Care is the Jewish community’s national cancer support organisation, enabling patients, family and friends to manage the impact of a cancer diagnosis.
Genetic Alliance UK
Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare, and undiagnosed conditions in the UK.
Jewish Care are the largest provider of health and social care services for the Jewish community in the UK.
Kisharon offers education, opportunity and support to children and adults with complex and profound learning disabilities. Individuals supported by Kisharon are taught the skills they need to live independently within the community and to lead fulfilling lives.