At Jnetics we are committed to protecting your personal information, to being transparent about what we do with it, and to using your personal information in accordance with all applicable laws concerning the protection of personal information. We do not want to do anything with your information you wouldn’t reasonably expect.
- how we may obtain your personal information.
- what information we collect.
- how we will use that information.
- who we share your information with.
- your choices regarding your information we hold.
We collect information in the following ways:
- You may give us your information directly in order to sign up for one of our events; including education and/or screening programmes, when you contact us to ask about our activities, seek assistance, (e.g. by emailing us), make a donation to us, fundraise on our behalf, or otherwise give us personal information.
- We may combine information that we already have about you with information available publicly from external sources in order to gain a better understanding of you and to improve our fundraising methods, products and services. Such information could be for example, socio- demographic and lifestyle information and information about previous donations you have made. The information we get from other external sources may depend on your privacy settings or the responses you give, so you should regularly check them. [Depending on your settings or the privacy policies for social media and messaging services like Facebook, WhatsApp or Twitter, you might give us permission to access information from those accounts or services.] We may also obtain information about you where it is publicly available and found in places such as Companies House, Land Registry website and information that is published in articles and newspapers.
To understand how we use information about the communications devices you use, such as IP address (the location of the computer on the internet) and cookies, please see the http://www.jnetics.org/cookie-policy page.
Personal information is any information that can be used to identify you. For example, it can include information such as your name, date of birth, email address, postal address, telephone number, fax number and credit/debit card details, as well as information relating to your health or personal circumstances.
Data protection law recognises that certain categories of personal information are more sensitive. This is known as sensitive personal information and covers health information, racial or ethnic origin, religious beliefs or other beliefs of a similar nature, political opinion and trade union membership. We would only collect sensitive personal information where there is a clear need to do so such as to ascertain what services we provide (such as screening services) are relevant to you or to cater other services and support to you. Before collecting any sensitive personal information about you we will make it clear to you what information we are collecting and why.
How we use your information largely depends on why you are providing it. We may use your information in the ways set out below.
- We use your personal information to give you the information, support, services, or products you ask for.
- We use your information to gain a full understanding of your situation, so we can develop and offer you the best possible personalised services.
- We use your information to keep a record of your relationship with us and for internal administrative purposes (such as our accounting and records), and to let you know about changes to our services or policies.
- We use your personal information to look into, and respond to, complaints, legal claims or other issues.
- We use your personal information to claim Gift Aid on your donations.
- We use personal data to carry out statistical analysis and research in order to help us to understand how we are performing and how we can improve our services and meet the needs of people that require our help.
- We may also use your personal information for other purposes which we specifically notify you about and, where appropriate, obtain your consent.
- We may occasionally use profiling techniques to ensure communications are relevant and timely, and to provide an improved experience to our supporters. Profiling also allows us to target our resources effectively. We do this because it allows us to understand the background of the people who support us and uses our services and helps us to make appropriate requests to supporters who may be able and willing to give more than they already do or to tailor our services to better suit them. Importantly it enables us to provide you with a service that it better suited for your needs while raising more funds, sooner, and more cost-effectively, than we otherwise would.
- We will not sell your details to any third parties, but we may sometimes share your information with trusted service providers who are authorised to act on our behalf, or with whom we work in partnership to deliver and improve services for people affected by Jewish Genetic Disorders (JGDs) or who wish to be screened for JGDs.
When we collect your personal information, we use strict procedures and security features to prevent unauthorised access. However, no data transmission over the Internet is 100% secure. As a result, while we try to protect your personal information, Jnetics cannot guarantee the security of any information you transmit to us and you do so at your own risk.
The Jnetics website may include links to other sites, not owned or managed by us to improve our service to you. We cannot be held responsible for the privacy of information collected by websites not managed by us.
If you are aged 16 or under, you must get your parent/guardian’s permission before you provide any personal information on our websites.