Month: September 2012
14 Sep 2012
The New And Improved JGD UK Website
We have upgraded and now launched our website with thanks to funding from Jeans for Genes and the Dr Benjamin Angel Foundation. Designed to signpost people to the best available information, services and support, our new site will help make a real...
05 Sep 2012
Familial Dysautonomia Video: SEE ‘JANE’S STORY’ HERE
Jane’s Story is an informative and moving short video that captures the experience of living with Familial Dysautonomia (FD) through the personal story of the Pearl family,. FD is a rare Jewish genetic disorder that affects the autonomic and sen...