The past 10 days have marked an exciting start to a brand new chapter for Jnetics. After many weeks of development, the team officially launched The GENEius Programme by holding two events in Hasmonean Girls High School, and there is still one more to come.
On Tuesday 14th of March, Katrina Sarig, Executive Director, together with Tony Angel, Chair of the Trustees, gave a talk at Hasmonean Girls ‘Higher Education Evening’ for Parents and Year 12 students. This was an opportunity to introduce the programme to the parent body, describe its objectives, and show a video that illustrates precisely what the GENEius Programme involves and how, critically, it can save lives. Tony himself featured in the video with his wife Ruth, sharing their personal story of losing their son to Cystic Fibrosis- one of the disorders covered in the GENEius screening. It was clear from the feeling in the room that the parents gained a great appreciation for why it is so vital that young Jewish adults, like their own children, have easy access to carrier screening.
Then, excitingly, this week on Monday 20th March, Jnetics returned to Hasmonean Girls to run The GENEius Programme’s educational session for the first time. The girls, took part in an interactive and thought provoking session given by professional scientific communicator Dr Emily Grossman. Using a presentation, role play, videos, and lots of audience participation, Emily educated the students about severe recessive Jewish genetic disorders and how the conditions can be prevented by carrier screening. Feedback from the students has been overwhelmingly positive. One girl described that she and her classmates spent the rest of the day discussing the session and what they had learnt.
In just a few days, on Monday 27th of March, the Hasmonean Girls will have the opportunity to take part in their schools’ in-house GENEius screening event, when the Jnetics team will return to the school for the third time this month. Already, the number of students that have registered for the upcoming event has exceeded expectations, and the charity anticipates that the event will be hugely impactful.
To find out more about The GENEius Programme and to donate to this crucial cause, visit the GENEius microsite at www.geneius.org.