‘GENEius’ is Jnetics’ pioneering, education and screening initiative. It is designed to eliminate severe recessive Jewish genetic disorders (JGDs) from the UK Jewish community and aims to do so by targeting young Jewish adults in 3 main groups; Y12 students at the main Jewish high schools, university students, and couples going through the pre-marriage process with a synagogue movement.
GENEius is delivered in partnership with the NHS. Participation in the screening element of the programme allows individuals to find out if they are a healthy ‘carrier’ of one (or more) of the 9 most severe recessive JGDs and this is the first step in the prevention of these conditions. With the knowledge of their carrier status, screening participants can then make informed choices to help them avoid the risk of passing on one of the severe recessive JGDs to their future children.
For Y12 students, participation in GENEius involves attending an interactive educational session, followed by optional participation in an in-school screening event. The educational sessions covers JGDs and the role of carrier screening in the prevention of severe recessive conditions. For further information, visit the GENEius website.
The university-specific part of GENEius is currently under development. Further information will be available here in the near future.
The pre-marriage element of GENEius aims to ensure that all engaged Jewish couples are provided with information about JGDs, how severe recessive JGDs can be prevented, and information about how to access screening. Jnetics is working closely with all the UK synagogue movements in order to establish this. For engaged couples, screening is provided via the Jnetics Barnet Clinic or Virtual Clinic. See here for clinic details.