Jnetics employs an Chief Executive Officer, Project & Programme Manger, Project Co-ordinator, Database & Fundraising Administrator and Northern Outreach Officer, who work closely with our Board of Trustees and expert Scientific and Medical advisors. We also have a team of freelance professionals managing certain areas of activity and delivering specific projects. In addition, we are supported by volunteers who generously share their time and expertise to help progress our work.
Over time and with the necessary funding, Jnetics will employ other staff (e.g. outreach education officer, researcher etc.) to support our project work and enable us to expand our services.
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Our Chief Executive Officer, Nicole Gordon, is responsible for our strategic direction, delivery of our services, as well as running the day-to-day aspects of the charity:
Chief Executive Officer, Jnetics
Our Project & Programme Manager, Greg Blank, is responsible for managing our key projects, including the GENEius programme, as well as coordinating our screening services and managing our volunteers.
Our Project Coordinator, Dvorit Faust-Collins, is assisting with the development and delivery of the GENEius programme and supporting the other on-going Jnetics activities.
Our Northern Research and Development Manager, Aviva Lewis , based in our Manchester office, is responsible for assisting with the research, development and delivery the GENEius programme, developing the organisation’s activities in the main Jewish communities outside of London, as well as supporting the other on-going Jnetics activities.
Gaby Baigel is our Database & Fundraising Administrator and is responsible for charity’s database and providing fundraising administrative support, including; donor management, fundraising events, and communications.
Our bookkeeper and office manager Aurelia Meisels is responsible for our accounts and the smooth running of our office.
Jnetics is managed by a board of trustees responsible for ensuring that the charity meets its objectives whilst complying with legal obligations under charity and company law. The board provides guidance for the strategic development of the charity and reviews work as it develops.
Our trustees have experience across charity management, finance and fundraising, marketing and PR, and healthcare.
Anthony Angel (chairman)
Anthony was the former Worldwide Managing Partner at Linklaters, Executive Managing Director EMEA at Standard & Poor’, Global Co-Chairman at DLA Piper and Trustee and Treasurer of the Cystic Fibrosis Trust before becoming chairman of Jnetics’ board of trustees. Anthony’s son Benjamin died aged 26 from Cystic Fibrosis. He is committed to preventing the suffering and pain of other Jewish families from the death of a child from what are now avoidable genetic diseases.
Ian Pearl, Solicitor, OGR Stock Denton
Ian Pearl is a partner in the law firm of OGR Stock Denton LLP and specialises in dispute resolution.
He is married to Jane who is a midwife and they have four children. Their third child was born in 2006 and within a few months of birth was diagnosed as having Familial Dysautonomia. Despite Jane having had screening for Tay Sachs and both being actively involved in the Jewish community, they had no knowledge of FD or the risk to any of their children being born with any of the recessive conditions which disproportionately affect the Jewish community. As a result of their experience Ian resolved that no other parents should be placed in the position they found themselves and Ian became one of the founding trustees of JNetics and has been an enthusiastic supporter of the highly professional screening which is being rolled out across the community.
Tammy Rothenberg, BA (Hons) BM BCh MRCPCH MSc (Allergy)
Tammy is a paediatrician with two decades of experience in the NHS. She is committed to Jnetics’ aims of improving awareness of Jewish Genetic diseases, improving access to screening, and providing support for those affected by these diseases. She has long experience of working within the NHS, and currently works at Homerton University Hospital, which serves the large Jewish community based around Stamford Hill. She is particularly motivated to reduce barriers between different organisations, and work across boundaries to help improve things.
Elaine is an experienced CEO/Senior Executive and Non-Executive Director with a successful history of working in the statutory and charity sectors. Following 14 years in several Board posts as a CEO and Director in the NHS, her final post was Executive Director of Commissioning and Performance Management at Hillingdon Primary Care Trust. Elaine was CEO at Chai Cancer Care for 5 years before taking on the role of CEO at Norwood for 7 years, stepping down in Oct 2018. Elaine brings a wide range of valuable skills to the board, including health and social care management, strategic planning, organisational development and operational management.
Daniel Quint, BA (Hons), FCA
Daniel is an experienced CFO who has worked in Listed FTSE and Private International companies. He has held responsibility for Finance, Procurement, Retail Audit, IT, Legal, Property, Insurance, Internal audit and Internal control functions across businesses in the retail, leisure, infrastructure, engineering, business services and recruitment sectors. Daniel is married and has four children and lives in Edgware. He was one of the founding governors of Beit Shvidler Primary School, and was responsible for opening and building a brand new purpose built primary school in the heart of Edgware. Daniel has volunteered in a number of different areas of communal activity. While seeing his family grow up he has seen friends and family suffer from the challenges of bringing up children with genetic diseases. Daniel is keen to bring his communal and professional experience to do what he can to help Jnetics lead the way in trying to make sure that no Jewish child is born with a genetic disease that could have been prevented with the professional screening and education that Jnetics so effectively provides.
We were honoured and hugely grateful to have Dr Alan Naftalin, as one of our founding trustees who contributed enormously to our work right up until he passed away in December 2012.
Our expert scientific and medical advisors include scientists, clinicians, researchers and a genetic counsellor who are all specialists in fields relating to Jewish genetic disorders.
Our advisors guide us on medical and scientific issues relating to Jewish genetic disorders; help us ensure that our information is accurate and disseminated responsibly; advise us in relation to testing; and help facilitate collaborative work that supports our objectives.
- Dr Angela Barnicoat, MD DRCOG FRCP
Consultant Clinical Geneticist, Great Ormond Street Hospital
- Professor Nick Lench,
Co-founder and COO of Congenica Ltd, a genomic medicine company based at the Wellcome Genome Campus, Cambridge
- Professor Rosalind Eeles, MA FCRP FRCR PhD
Professor of Oncogenetics and Honorary Consultant in Clinical Oncology and Cancer Genetics, The Institute of Cancer Research and The Royal Marsden Hospital
- Dr Ian Ellis, FRCP, BSc
Consultant Clinical Geneticist, Alder Hey Children’s Hospital
- Sara Levene, RGC, MSc, BSc
Consultant Genetic Counsellor & PGD Lead, The Centre for Reproductive & Genetic Health
- Dr Simon Ramsden, PhD, FRCPath
Consultant Clinical Scientist, Manchester Centre for Genomic Medicine
Our educational experts are all specialists in fields relating to medical and Jewish education.
Our advisors guide us on development of the GENEius programme.
- Emma Cravitz, OBE
Emma is an educational psychologist who has worked with children in a number of London schools. She is the co-founder of Eden Primary school, Yeladenu pre-school, and is a governor of JCoSS
- Rabbi Dr Raphael Zarum, MD DRCOG FRCP
Rabbi Zarum is a leading Jewish educator and theoretical physicist. He teaches at conferences and seminars, synagogues and Jewish community centres around the world.
- Shelley Marsh, MA
Shelley is the Executive Director of Reshet, The Network for Jewish Youth Provision. She is also an advisor to the Paediatric Intensive Care Units Network, training and supporting healthcare professionals in both paediatric and neonatal intensive care units across the UK.
- Lord Leslie Turnberg
Lord Turnberg is a British medical professional and an author of many publications and books related to the medical and health services fields. His experience extends to areas of research in these fields, and maintaining a clinical practice. He has published four books and some 150 articles on medical and scientific research. He is a Labour Life peer and sits in the House of Lords.
- Lord David Pannick
Lord Pannick QC is one of the UK’s most highly regarded advocates, practising in a broad range of areas with a particular emphasis on Public law & Human Rights. In November 2009 he became a crossbench peer and sits in the House of Lords.
- Professor Patricia Jacobs, DSc, FRS, OBE
Professor of Human Genetics, University of Southampton
Professor Jacobs is a world-renown geneticist who has led a wide range of groundbreaking research projects on human chromosome abnormalities. She has authored over 250 articles which investigate the effect of chromosome abnormalities both in individuals with congenital abnormalities and in a wide variety of populations.
She is a Fellow of the Royal Society, a Foreign Associate of the United States National Academy of Sciences, a founder member of the American Board of Medical Genetics, and a founder member of the Academy of Medical Sciences. In 1999 she was awarded an OBE for services to genetics.